Difference between revisions of "MitoAction"

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MitoAction

Description

The mission of MitoAction is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.

Abbreviation: MitoAction

Reference: MitoAction

MitoPedia topics: MitoGlobal Organizations

The organization's goals

To improve quality of life for adults and children affected by mitochondrial disease.
To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
To provide specific and practical materials that help patients to manage their symptoms
To aggregate and connect the international mitochondrial disease community
To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
To create tools which empower patients and caregivers to be advocates for themselves or their children.

All are welcome and encouraged to join MitoAction. Membership is FREE.

Contact details

Chairman

Kira Mann, CEO

E-mail: [email protected]

President

MitoAction Board of Directors

Philip Borden

Business address

MitoAction

PO Box 51474

Boston, MA 02205

E-mail: [email protected]

For general inquiries and information: [email protected]

Mito 411 Support Line: [email protected]

Listed as a MitoGlobal Society.

MitoGlobal

MitoEAGLE

MitoGlobal Societies

MiPsociety

ASMRM

MitoGlobal Events

MitoGlobal first

@@ Line 9: / Line 9: @@
 }}
-==Chairman==
+=== The organization's goals ===
-::::Kira Mann, CEO
+:::* To improve quality of life for adults and children affected by mitochondrial disease.
-::::Email: [mailto:kira@mitoaction.org kira@mitoaction.org]
+:::* To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
+:::* To provide specific and practical materials that help patients to manage their symptoms
+:::* To aggregate and connect the international mitochondrial disease community
+:::* To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
+:::* To create tools which empower patients and caregivers to be advocates for themselves or their children.
-::::MitoAction Board of Directors - President
+All are welcome and encouraged to join MitoAction. Membership is FREE.
-::::Philip Borden
+==Contact details==
+===Chairman===
+::::'''Kira Mann, CEO'''
+::::E-mail: [mailto:[email protected] [email protected]]
+===President===
+::::MitoAction Board of Directors
+::::'''Philip Borden'''
-==Address of organisation==
+===Business address===
 ::::MitoAction
 ::::PO Box 51474
 ::::Boston, MA 02205
-::::Email: [mailto:[email protected] [email protected]]
+::::E-mail: [mailto:[email protected] [email protected]]
 ::::For general inquiries and information: [mailto:[email protected] [email protected]]
@@ Line 27: / Line 40: @@
+[[Image:MitoGlobal.jpg|right|120px|link=http://www.bioblast.at/index.php/Mitochondrial_Global_Network|MitoGlobal]]
-To do this, MitoAction's goals include:
+{{MitoGlobal_Societies}}
-* To improve quality of life for adults and children affected by mitochondrial disease.
-* To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
-* To provide specific and practical materials that help patients to manage their symptoms
-* To aggregate and connect the international mitochondrial disease community
-* To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
-* To create tools which empower patients and caregivers to be advocates for themselves or their children.
-All are welcome and encouraged to join MitoAction. Membership is FREE.