Difference between revisions of "MitoAction"
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==Chairman== | ==Contact details== | ||
===Chairman=== | |||
::::Kira Mann, CEO | ::::Kira Mann, CEO | ||
::::Email: [mailto:[email protected] [email protected]] | ::::Email: [mailto:[email protected] [email protected]] | ||
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== | ===Business address=== | ||
::::MitoAction | ::::MitoAction | ||
::::PO Box 51474 | ::::PO Box 51474 | ||
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==Additional information== | |||
To do this, MitoAction's goals include: | To do this, MitoAction's goals include: | ||
* To improve quality of life for adults and children affected by mitochondrial disease. | * To improve quality of life for adults and children affected by mitochondrial disease. | ||
Revision as of 18:20, 22 March 2017
- high-resolution terminology - matching measurements at high-resolution
MitoAction
Description
The mission of MitoAction is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
Abbreviation: MitoAction
Reference: MitoAction
MitoPedia topics: MitoGlobal Organizations
Contact details
Chairman
- Kira Mann, CEO
- Email: [email protected]
- MitoAction Board of Directors - President
- Philip Borden
Business address
- MitoAction
- PO Box 51474
- Boston, MA 02205
- Email: [email protected]
- For general inquiries and information: [email protected]
- Mito 411 Support Line: [email protected]
Additional information
To do this, MitoAction's goals include:
- To improve quality of life for adults and children affected by mitochondrial disease.
- To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
- To provide specific and practical materials that help patients to manage their symptoms
- To aggregate and connect the international mitochondrial disease community
- To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
- To create tools which empower patients and caregivers to be advocates for themselves or their children.
All are welcome and encouraged to join MitoAction. Membership is FREE.
