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IRDiRC
Description
The International Rare Diseases Research Consortium (IRDiRC) teams up researchers and organizations investing in rare diseases research in order to achieve two main objectives by the year 2020, namely to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases.
Abbreviation: IRDiRC
Reference: IRDiRC
MitoPedia topics: MitoGlobal Organizations
The organization's goals
A number of grand challenges are being addressed through collaborative actions to reach these 2020 goals such as:
- establishing and providing access to harmonized data and samples,
- performing the molecular and clinical characterization of rare diseases,
- boosting translational, preclinical and clinical research,
- and streamlining ethical and regulatory procedures.
Contact details
Chairman
- Christopher P. Austin
Members of the Scientific Committees
Diagnostics Scientific Committee (DSC)
- Kym Boycott (Chair)
- Gareth Baynam (Vice Chair)
Interdisciplinary Scientific Committee (ISC)
- Petra Kaufmann (Chair)
- Domenica Taruscio (Vice Chair)
Therapies Scientific Committee (TSC)
- Diego Ardigò (Chair)
- Virginie Hivert (Vice-Chair)
Business address
- IRDiRC – Inserm US14
- Plateforme Maladies Rares | Rare Diseases Platform
- 96 rue Didot, France
- 75014 Paris
- E-mail: [email protected]
- Tel: +33 1 56 53 81 37
- Fax: +33 1 56 53 81 38
Listed as a MitoGlobal Society.
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